I nfant Death
Website by Jeff Carr
Other Support Resources
Here's a list of local and national organizations that provide support for women and couples who have experienced early pregnancy loss, stillbirth, or newborn loss. If your the family or friend of the parent who experienced the loss, follow this link and read these.
SHARE Pregnancy and Infant Loss Support, Inc.
Capitol MISS Foundation
Two Tiny Hands
Still Standing Magazine
March of Dimes, National Capital Area Chapter
Center for Loss in Multiple Birth (CLIMB), Inc.
The Compassionate Friends, Inc.
A Place to Remember
Now I Lay Me Down to Sleep
PLIDA (Pregnancy Loss and Infant Death Alliance)
Remembering Our Babies
National Fetal and Infant Mortality Review
A Baby's Legacy
The Sweet Pea Project
Advice and Support Resources for Friends and Family
For Friends and Family, when a baby is stillborn
6 tips for talking with parents, from a father who lost his baby boy
Here are 6 tips for talking with parents that we've learned through many hard, great conversations with some amazing (amazing) friends after we lost out son a few days before his due date. Feel free to share.
1. Acknowledge It: Before this happened to us, I TOTALLY would have gotten this one wrong.The biggest fear we heard from friends was that by calling, it would make us feel sad by bringing it up. Turns out, though, it's really comforting to hear something from a friend, even if it's the "wrong" thing. The people who acknowledge it by addressing it are awesome. Days or months after, don't worry about "reminding" a parent of their child's death; it's pretty much all they think about, and they love talking about him or her, too (they're proud parents like anyone else). If you don't know what to say, google for advice or just say "I have no idea what to say, but I love you."
2. Follow Up For The Win: You're amazing if you call or write a letter right after it happens. You're a super star if you follow up even once later on. You'll be LOVED ETERNALLY if you reach out multiple times and--most especially--on anniversaries (monthly anniversaries at first, but later on each year: add his/her birthday to your calendar with the others, make a note to write a Mother's/Father's Day card each year). We've met many parents who--17 years later--cry like it happened yesterday; parents need support for a long, long, long, long time.
3. Baby Talk: People who talk about your baby like they talk about other babies are pretty much the bees knees. Validate the baby's life: use his/her name often if the child was named; add him/her to the family prayers; ask questions. Refer to the parents as "parents," and--if you're family--refer to yourself as an uncle or aunt or cousin, or add one more to the tally of the number of grand kids you brag about. Some parents may have pictures; ask to check them out, or ask to look at any keepsakes they got from the hospital or during the pregnancy. Did I just walk by your refrigerator and see my son's picture mixed in with the other pictures?! YOU'RE GETTING A BEAR HUG!
4. No Exchanges: The best conversations are about the individual who passed away. There's a totally understandable tendency to offer hope in the form of "Don't worry, you'll get pregnant again" (and this is another thing I TOTALLY would have done, too, and found counter intuitive after having gone through it). While many parents do want to get pregnant again, the best conversations aren't references to other, future children; those people seem to get that no other child would be a replacement for the one who was lost. If there were twins and one survived or if there are living older siblings, those parents are still mourning the loss of a child, so "at least you have the one" is not comforting. For us, we didn't lose "a baby" that we would like to replace with "another baby"; we lost out first-born son, Simon Alexander Gillette, who had a lot of hair and a million other things that make him the unique person he is. Ten kids later, we'll still miss the Si-Guy.
5. Inquiring Minds: It's sort of counter intuitive, but inquisitive folks are great, and friends who ask a lot of questions still make me happy. Though it can be emotional or sad, many people find relief in talking about their experience from early pregnancy to those final fateful days, even the most tragic parts of the ordeal. Unlike an adult who has died--who leaves behind years of stories and pictures and nicknacks--parents of infants who have passed have precious few memories to savor. Even those worst moments can be nice to think about and share for that reason.
6. Just Do It: The best ones don't ask what they can do; they just do it. Come over, make the meal, send the card, mow the grass, clean the toilets. In the first few weeks you're so out of your mind you can't make any decisions; everyone who popped by or just did things made us feel wonderful. The specific action being taken is way less important than the thoughtfulness behind trying to help.
Finally, the sucky truth of the matter is that the whole situation just sucks. A child lost a life; the parents are grief stricken; and--honestly--it's just going to suck sometimes to be the friend or family member of someone going through this. It's an unfair burden for the friends and family, and even if you do everything right there are going to be times when the other person still gets upset due to the grief. And it changes things: the parents are different people now. It's not fair to the friends and family, but those who change with us are incredible friends. Thank you, thank you, thank you all for doing so.